Over the last year or so I have been pretty under the weather. I have been constantly shattered, had major issues with my bowels and been in and out of hospital for numerous tests including scans, x-rays, a barium follow through and blood transfusions.
Yesterday I was finally given a diagnosis. I have Crohns Disease, which although isn’t curable, but it is treatable and hopefully I will go into remission once the right treatment balance is reached. The Crohns explains why I am anemic and also low in B12, so dependant on blood results I will have either an iron infusion or blood transfusion next week (hopefully) and also a B12 injection and we will see how I progress and my options going forward will be discussed with the consultant at my next visit in a month of so’s time.
The crohns diagnosis explains most of my symptoms, but not he acute pain I have in my shoulder and chest at times and also the pretty constant feeling of nausea, however, we have also discovered I have giant para esophageal hernia (which in all likelihood has been with me since birth), but with pregnancies and my mastectomy surgery may have moved to create these symptoms. This is going to require surgery, however, I need to have a much higher hemoglobin level before this can take place.
My illness has had a pretty big impact on family life, but now we know what it is, we can take steps to treat it and I am very relieved that it isn’t bowel cancer (which due to the BRCA gene I have a higher risk of). It will also mean postponing any reconstructive surgery until after my para esophageal hernia surgery, which is a little upsetting.
However, we have come though much worse than this and I will get though, no we will get through this as a family.